National Sarcodosis Awareness Day

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By Nurse Diane

In 1991 President George Bush issued a Proclamation declaring today as National Sarcodosis Day, here is an excerpt from that proclamation:

Sarcodosis, a disease that affects many of our fellow citizens and people around the world, remains shrouded in mystery. Skin-related symptoms of this chronic, multi-system disease were first recognized more than 100 years ago; however, the effects of Sarcodosis on other bodily organs were not observed until the first quarter of this century. Today researchers are still trying to learn more about the cause and the nature of this affliction. Sarcodosis can strike people of all races and of all ages, but, according to the United States Department of Health and Human Services, it is most common among black Americans who are between the ages of 20 and 40. While no cause has yet been identified, it is thought that heredity predisposes some individuals to the disease. Intensive research during the past decade has not only supported this belief but also enabled physicians to diagnose and to manage Sarcodosis more effectively.

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Today researchers at both the National Institute of Allergy and Infectious Diseases and the National Heart, Lung, and Blood Institute are leading studies on the etiology, diagnosis, and treatment of Sarcodosis. On this occasion, we recognize their work and that of other concerned physicians and scientists throughout the United States. We also salute the victims of Sarcodosis who demonstrate great courage and determination in their efforts to cope with the disease; and we pay tribute to their family members and to other concerned Americans who are engaged in grass-roots efforts to promote awareness of Sarcodosis, as well as improved treatment and support for its victims.

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Sarcodosis is a disease in which inflammation occurs in the lymph nodes, lungs, liver, eyes, skin, or other tissues.  Some causes include:

• Extreme immune response to infection;
• High sensitivity to environmental factors;
• Genetic factors;
• age, usually between the ages of 20 to 40 years old;
• Affects women more than men; and or
• Can occur if you have a close relative who suffers from Sarcodosis

Symptoms include chest pains, dry cough, shortness of breath, loss of appetite, general feeling of malaise, fever, hair loss, rash, and headaches or seizures.

Sarcodosis can be diagnoses through a physical exam, chest x-rays and blood work.  Many with Sarcodosis are not seriously ill, and will get better without treatment on their own in about 3 years.  For more serious conditions, they may be treated with immunosuppressant drugs.

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Today is National Sarcodosis Awareness Day.  To learn more about it or how you can help, click on this site. http://www.inspire.com/groups/stop-sarcoidosis/discussion/national-sarcoidosis-awareness-day-august-29-2009/